Registration starting soon for a family style obstacle course fun run to take place at Transcends Fitness on Saturday, May 3, 2014. Join us for a morning of family fun and run the 2 mile course. Overcoming obstacles is the theme of the day. As Drew and his family strive each day to overcome the obstacles Batten's Disease has brought to their lives and those of hundreds of families they now consider friends worldwide which also work daily to find a cure for this rare disease. An overwhelming amount of the funds to conduct research are from private resources of those families affected. We can help and enjoy a hopefully beautiful morning in May as well! if it rains, this will be a mud run so the event goes rain or shine. run or cheer from the finish line!
Online registration here will open soon. Runners will go in heats every 15 minutes throughout the morning, so gather your family and friends. Put together a team of participants to go through the course together! Space is limited so register early!
The second grade girl scout troop at Sol Feinstone Elementary ran a very successful book drive this Spring with thousands of books collected, sorted, and boxed up for delivery to needy schools. These books were delivered to three different Philadelphia area schools as well as a fantastic after school writing program run for children in an area of Philly where programs like this are needed most. The books were put to immediate use this Spring, and will be in those classrooms for many years to come. Thanks to the girl scouts, their leaders, and all of the many in the community that donated their books!
The DiMedio Foundation again sponsored two families through the Saint Nicholas Project. These families had a nice holiday meal, and many gifts to put under their Christmas tree. In all, the families have six children which enjoyed new bicycles, new clothes, scarves, gloves, and toys for Christmas.
How it works: we all collect used bikes, they recondition the bikes and sell them at the Bike Exchange. Since the Bike Exchange is run by volunteers, nearly all funds from the sale of bikes support the Club's after school programs.
The 2010 Drew's Hope Tennis Round Robin was a huge success! Thank you to everyone involved. We hope to see everyone again soon at our next event!
Drew's Hope Research Foundation was established in honor of Drew Ferrandino. Batten Disease is considered an orphan disease with very little public funding available for research. Drew's Hope is committed to raising funds to support research and creating awareness about Batten Disease. With appropriate funding we can further research to provide a treatment and/or cure for this terrible disease.
Run and overcome obstacles on Transcend Fitness' one or three mile course. Register soon with family and friends to fund important research to find a cure for Battens Disease!
The DiMedio Foundation is dedicated to provide opportunity for exceptionally challenged or disadvantaged children. We will support these children by shining a "bright light" of opportunity, fun and laughter in their lives. Email firstname.lastname@example.org for more information on how you can contribute! Thanks!